By Brent Daniel Mittelstadt, Luciano Floridi (eds.)
This e-book offers innovative learn at the new moral demanding situations posed by way of biomedical sizeable information applied sciences and practices. ‘Biomedical huge facts’ refers back to the research of aggregated, very huge datasets to enhance scientific wisdom and scientific care. The ebook describes the moral difficulties posed through aggregation of biomedical datasets and re-use/re-purposing of information, in parts akin to privateness, consent, professionalism, strength relationships, and moral governance of huge information structures. ways and techniques are mentioned that may be used to deal with those difficulties to accomplish the fitting stability among the social items of biomedical significant info examine and the security and privateness of people. Seventeen unique contributions examine the moral, social and similar coverage implications of the research and curation of biomedical huge facts, written via prime specialists within the components of biomedical learn, clinical and know-how ethics, privateness, governance and information security. The e-book advances our figuring out of the moral conundrums posed via biomedical substantial facts, and indicates how practitioners and policy-makers can deal with those concerns going forward.
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Extra info for The Ethics of Biomedical Big Data
Accessed 19 Sept 2015. , S. Kluberg, K. Wilson, et al. 2014. Digital surveillance for enhanced detection and response to outbreaks. The Lancet Infectious Diseases 14(11): 1035–1037. 1016/S1473-3099(14)70953-3. Angrist, Misha. 2007. Here is a human being: At the dawn of personal genomics. New York: Harper. Auffray, Charles, and Leroy Hood. 2012. Systems biology and personalized medicine–the future is now. Biotechnology Journal 7(8): 938–939. M. Althouse, and M. Dredze. 2014. Could behavioral medicine lead the web data revolution?
And it is undoubtedly unsettling to have intimate personal health information visible to unknown, untrusted others. It is not only questions of harm that raise concerns; after all, this information might never be communicated beyond the database and might never cause social harm to the individual in question. Rather, it is the basic fact that this personal health information has become available without the person in question being aware of it, or having any control over its availability, that constitutes a fundamental privacy 24 E.
2015)? Can the real potential of Big Data be exploited while we are still unable to answer very fundamental questions about our moral interaction with it (Mayer-Schönberger and Cukier 2013)? The greater the volume of data available to us, and the more uses we put them to, the more urgent the need to explore this part of the Big Data phenomenon. All of these questions, and many others, raise a single bigger one: whether the brightness and glory of Big Data are partly an illusion created by keeping these other issues in the shadow.